Hello, and thanks for visiting! Please note: ALL donations made to my team go to the Amanda Rose Fund, benefiting NF2 research! 

In January 2020, I was diagnosed with Neurofibromatosis Type 2 (NF2). 4 weeks later, I received my first craniotomy, followed by 6 weeks of daily radiation treatment. In June 2022, I received my second craniotomy in which 2 tumors were removed. Just a year after that, I began falling and losing my balance. I had 2 tumors removed from my spine and had to teach myself how to walk properly again. My balance problems and weakness from the spinal and brain tumors has remained permanent. I currently live with dozens of brain and spinal tumors. 

Last year, I received year-long biweekly infusion treatment with the hopes of improving my vision from the tumors. This past August, my medical team and I decided to cease the infusion treatments and switch to an oral chemo that I now take daily to improve my vision and hearing, while keeping my tumors stable. 

While living with the symptoms caused by these tumors is not easy, I've learned how to make the best of the situation and hope to enlighten more people about NF and brain tumor awareness. I’m looking forward to celebrating HOPE with all my teammates!