We found out just 13 days after Harper was born that she had Pompe disease. We'll never forget that phone call or that day.  We were scared, confused and extremely worried.  Our family and friends have been a great support system for us and we've learned so much about Pompe, about ourselves and about how strong our Harper is. 

We knew from the very beginning that we just wanted the best possible care for Harper. After visiting four different hospitals and speaking with a handful of different specialists, we found it. The doctors, nurses and case workers we have dealt with along the way are simply amazing. Pompe is very rare - but it is very comforting knowing that there is a large community of doctors and families working so hard to find a cure. 

While we know that Pompe will be with Harper for the rest of her life, we're confident she is getting the best care and will continue to as she gets older. Harper is now 5 months old. She is the strongest, happiest little girl around. She has done well with all of her tests and continues to grow and progress. 

Harper is HaperStrong. Our family is HarperStrong. We are all HaperStrong. We thank you for any donation that will go directly toward helping Duke Children's and Pompe families.